Hello everyone, I was reading George's book last night and came across a section that looked promising for sufferers of PPMS.....IVIG Therapy only to find that is was not yet approved for use in Australia. So I did some research on google and found that approval had been granted in 2008 and updated in 2011.
You can imagine my excitement when I saw this so I down loaded a "Quick Reference Guide" for the use of IVIG's. Scanning the index I saw MS was on page 82 so went straight to there. Here is what the guide offers:
(Condition for which IVIg has an emerging therapeutic role)
Indication for IVIg use
Short term therapy in patients with clinically definite relapsing
remitting MS in the following circumstances:
1. Pregnancy and the immediate post partum period
when other immunomodulation is contraindicated;
2. Young patients with severe relapsing remitting
disease in whom other therapies have failed;
3. Severe relapse with no response to high dose
Level of evidence
Category 2a – Some RCTs and/or case studies
– Evidence of probable benefit – more research needed."
You can imagine my disappointment when I read the criteria for use of IVIG Therapy only to find that (once again) it is a therapy for RRMS and PPMS sufferers are left to sit on their own and contemplate their grim future. My excitement has turned to utter dismay but I suppose I'm not too surprised. It will be just one more question for the Neurologist next week.
Thanks for listening to me gripe yet again.